{"links":{"self":"https://petition.parliament.uk/petitions/775393.json"},"data":{"type":"petition","id":775393,"attributes":{"action":"Dedicated funding for Epidermolysis Bullosa and rare skin conditions research","background":"Increase dedicated, ring-fenced Government funding for research into rare skin conditions, including all forms of Epidermolysis Bullosa (EB), to accelerate the development of effective treatments and support UK clinical trials.","additional_details":"We call on the Government to provide dedicated, ring-fenced funding for research into EB and other rare skin conditions. Children with conditions such as EB experience severe, painful blistering from birth. Promising gene and cell therapies offer real hope, yet research remains significantly underfunded. We urge the Government to ring-fence funding, support clinical trials, and prioritise these conditions within the UK Rare Diseases Framework.","committee_note":null,"state":"open","signature_count":279,"closing_date":"2027-01-27","created_at":"2026-06-28T14:18:01.476Z","updated_at":"2026-07-28T21:11:50.000Z","rejected_at":null,"opened_at":"2026-07-27T14:33:53.804Z","closed_at":null,"moderation_threshold_reached_at":"2026-06-28T14:37:10.000Z","response_threshold_reached_at":null,"government_response_at":null,"debate_threshold_reached_at":null,"debate_scheduled_on":null,"scheduled_debate_date":null,"debate_outcome_at":null,"creator_name":"Ciara Burnside","rejection":null,"government_response":null,"debate":null,"departments":[{"acronym":"DHSC","name":"Department of Health and Social Care","url":"https://www.gov.uk/government/organisations/department-of-health-and-social-care"}],"topics":[],"signatures_by_country":[{"name":"United Kingdom","code":"GB","signature_count":279}],"signatures_by_constituency":[{"name":"Aldershot","ons_code":"E14001063","mp":"Alex Baker MP","signature_count":2},{"name":"Aldridge-Brownhills","ons_code":"E14001064","mp":"Rt Hon Wendy Morton MP","signature_count":1},{"name":"Basildon and Billericay","ons_code":"E14001077","mp":"Rt Hon Richard Holden MP","signature_count":1},{"name":"Basingstoke","ons_code":"E14001078","mp":"Luke Murphy MP","signature_count":1},{"name":"Bedford","ons_code":"E14001084","mp":"Mohammad Yasin MP","signature_count":5},{"name":"Bicester and Woodstock","ons_code":"E14001090","mp":"Calum Miller MP","signature_count":1},{"name":"Birmingham Hodge Hill and Solihull North","ons_code":"E14001095","mp":"Rt Hon Liam Byrne MP","signature_count":1},{"name":"Brentwood and Ongar","ons_code":"E14001125","mp":"Alex Burghart MP","signature_count":1},{"name":"Brigg and Immingham","ons_code":"E14001128","mp":"Martin Vickers MP","signature_count":7},{"name":"Burton and Uttoxeter","ons_code":"E14001143","mp":"Jacob Collier MP","signature_count":1},{"name":"Calder Valley","ons_code":"E14001147","mp":"Josh Fenton-Glynn MP","signature_count":2},{"name":"Castle Point","ons_code":"E14001154","mp":"Rebecca Harris MP","signature_count":1},{"name":"Chingford and Woodford Green","ons_code":"E14001167","mp":"Rt Hon Sir Iain Duncan Smith MP","signature_count":2},{"name":"Chorley","ons_code":"E14001170","mp":"Rt Hon Sir Lindsay Hoyle MP","signature_count":1},{"name":"Christchurch","ons_code":"E14001171","mp":"Sir Christopher Chope MP","signature_count":1},{"name":"Dagenham and Rainham","ons_code":"E14001189","mp":"Margaret Mullane MP","signature_count":1},{"name":"Darlington","ons_code":"E14001190","mp":"Lola McEvoy MP","signature_count":1},{"name":"Doncaster Central","ons_code":"E14001198","mp":"Sally Jameson MP","signature_count":1},{"name":"Doncaster North","ons_code":"E14001200","mp":"Rt Hon Ed Miliband MP","signature_count":1},{"name":"Dunstable and Leighton Buzzard","ons_code":"E14001206","mp":"Alex Mayer MP","signature_count":1},{"name":"East Surrey","ons_code":"E14001215","mp":"Rt Hon Claire Coutinho MP","signature_count":1},{"name":"East Wiltshire","ons_code":"E14001217","mp":"Danny Kruger MP","signature_count":1},{"name":"Eastleigh","ons_code":"E14001220","mp":"Liz Jarvis MP","signature_count":1},{"name":"Ely and East Cambridgeshire","ons_code":"E14001224","mp":"Charlotte Cane MP","signature_count":1},{"name":"Enfield North","ons_code":"E14001225","mp":"Feryal Clark MP","signature_count":1},{"name":"Epping Forest","ons_code":"E14001226","mp":"Dr Neil Hudson MP","signature_count":2},{"name":"Exmouth and Exeter East","ons_code":"E14001232","mp":"David Reed MP","signature_count":1},{"name":"Glastonbury and Somerton","ons_code":"E14001247","mp":"Sarah Dyke MP","signature_count":1},{"name":"Great Grimsby and Cleethorpes","ons_code":"E14001255","mp":"Melanie Onn MP","signature_count":9},{"name":"Guildford","ons_code":"E14001258","mp":"Zöe Franklin MP","signature_count":1},{"name":"Hamble Valley","ons_code":"E14001263","mp":"Paul Holmes MP","signature_count":1},{"name":"Hemel Hempstead","ons_code":"E14001278","mp":"David Taylor MP","signature_count":2},{"name":"Hinckley and Bosworth","ons_code":"E14001288","mp":"Dr Luke Evans MP","signature_count":1},{"name":"Hitchin","ons_code":"E14001289","mp":"Alistair Strathern MP","signature_count":61},{"name":"Honiton and Sidmouth","ons_code":"E14001291","mp":"Richard Foord MP","signature_count":1},{"name":"Hornchurch and Upminster","ons_code":"E14001292","mp":"Julia Lopez MP","signature_count":2},{"name":"Hornsey and Friern Barnet","ons_code":"E14001293","mp":"Catherine West MP","signature_count":1},{"name":"Huntingdon","ons_code":"E14001298","mp":"Ben Obese-Jecty MP","signature_count":1},{"name":"Louth and Horncastle","ons_code":"E14001343","mp":"Rt Hon Victoria Atkins MP","signature_count":2},{"name":"Luton North","ons_code":"E14001345","mp":"Sarah Owen MP","signature_count":2},{"name":"Luton South and South Bedfordshire","ons_code":"E14001346","mp":"Rachel Hopkins MP","signature_count":1},{"name":"Maidstone and Malling","ons_code":"E14001349","mp":"Helen Grant MP","signature_count":1},{"name":"Maldon","ons_code":"E14001351","mp":"Rt Hon Sir John Whittingdale MP","signature_count":1},{"name":"Mid Bedfordshire","ons_code":"E14001359","mp":"Blake Stephenson MP","signature_count":14},{"name":"Mid Cheshire","ons_code":"E14001361","mp":"Andrew Cooper MP","signature_count":1},{"name":"Milton Keynes Central","ons_code":"E14001369","mp":"Emily Darlington MP","signature_count":1},{"name":"North Bedfordshire","ons_code":"E14001384","mp":"Richard Fuller MP","signature_count":19},{"name":"North East Cambridgeshire","ons_code":"E14001390","mp":"Rt Hon Steve Barclay MP","signature_count":1},{"name":"North East Hertfordshire","ons_code":"E14001393","mp":"Chris Hinchliff MP","signature_count":20},{"name":"North Norfolk","ons_code":"E14001396","mp":"Steff Aquarone MP","signature_count":1},{"name":"North West Leicestershire","ons_code":"E14001404","mp":"Amanda Hack MP","signature_count":1},{"name":"Norwich North","ons_code":"E14001408","mp":"Alice Macdonald MP","signature_count":1},{"name":"Orpington","ons_code":"E14001417","mp":"Gareth Bacon MP","signature_count":6},{"name":"Rayleigh and Wickford","ons_code":"E14001437","mp":"Rt Hon Mark Francois MP","signature_count":1},{"name":"Richmond Park","ons_code":"E14001445","mp":"Sarah Olney MP","signature_count":1},{"name":"Rochester and Strood","ons_code":"E14001447","mp":"Lauren Edwards MP","signature_count":1},{"name":"Rotherham","ons_code":"E14001452","mp":"Sarah Champion MP","signature_count":1},{"name":"Rutland and Stamford","ons_code":"E14001458","mp":"Alicia Kearns MP","signature_count":1},{"name":"Selby","ons_code":"E14001464","mp":"Keir Mather MP","signature_count":1},{"name":"South Basildon and East Thurrock","ons_code":"E14001480","mp":"James McMurdock MP","signature_count":2},{"name":"South Cambridgeshire","ons_code":"E14001481","mp":"Pippa Heylings MP","signature_count":2},{"name":"South Northamptonshire","ons_code":"E14001490","mp":"Sarah Bool MP","signature_count":1},{"name":"South West Norfolk","ons_code":"E14001497","mp":"Terry Jermy MP","signature_count":1},{"name":"Southend East and Rochford","ons_code":"E14001501","mp":"Mr Bayo Alaba MP","signature_count":1},{"name":"St Austell and Newquay","ons_code":"E14001508","mp":"Noah Law MP","signature_count":1},{"name":"St Ives","ons_code":"E14001511","mp":"Andrew George MP","signature_count":1},{"name":"St Neots and Mid Cambridgeshire","ons_code":"E14001512","mp":"Ian Sollom MP","signature_count":4},{"name":"Stevenage","ons_code":"E14001516","mp":"Kevin Bonavia MP","signature_count":16},{"name":"Stoke-on-Trent Central","ons_code":"E14001520","mp":"Gareth Snell MP","signature_count":1},{"name":"Stoke-on-Trent South","ons_code":"E14001522","mp":"Dr Allison Gardner MP","signature_count":1},{"name":"Stratford and Bow","ons_code":"E14001525","mp":"Uma Kumaran MP","signature_count":1},{"name":"Swindon North","ons_code":"E14001536","mp":"Will Stone MP","signature_count":1},{"name":"Tottenham","ons_code":"E14001553","mp":"Rt Hon David Lammy MP","signature_count":2},{"name":"Truro and Falmouth","ons_code":"E14001554","mp":"Jayne Kirkham MP","signature_count":1},{"name":"Warrington North","ons_code":"E14001564","mp":"Charlotte Nichols MP","signature_count":1},{"name":"Wellingborough and Rushden","ons_code":"E14001571","mp":"Gen Kitchen MP","signature_count":2},{"name":"Welwyn Hatfield","ons_code":"E14001573","mp":"Andrew Lewin MP","signature_count":1},{"name":"Windsor","ons_code":"E14001588","mp":"Jack Rankin MP","signature_count":2},{"name":"Witney","ons_code":"E14001591","mp":"Charlie Maynard MP","signature_count":1},{"name":"Wokingham","ons_code":"E14001593","mp":"Clive Jones MP","signature_count":1},{"name":"Yeovil","ons_code":"E14001603","mp":"Adam Dance MP","signature_count":1},{"name":"Fermanagh and South Tyrone","ons_code":"N05000007","mp":"Pat Cullen MP","signature_count":2},{"name":"Argyll, Bute and South Lochaber","ons_code":"S14000067","mp":"Brendan O'Hara MP","signature_count":1},{"name":"Edinburgh North and Leith","ons_code":"S14000079","mp":"Tracy Gilbert MP","signature_count":3},{"name":"Hamilton and Clyde Valley","ons_code":"S14000092","mp":"Imogen Walker MP","signature_count":1},{"name":"Lothian East","ons_code":"S14000096","mp":"Rt Hon Douglas Alexander MP","signature_count":2},{"name":"Perth and Kinross-shire","ons_code":"S14000103","mp":"Pete Wishart MP","signature_count":1},{"name":"Rutherglen","ons_code":"S14000104","mp":"Michael Shanks MP","signature_count":1},{"name":"Berwickshire, Roxburgh and Selkirk","ons_code":"S14000108","mp":"John Lamont MP","signature_count":1},{"name":"Kilmarnock and Loudoun","ons_code":"S14000110","mp":"Lillian Jones MP","signature_count":1},{"name":"Aberafan Maesteg","ons_code":"W07000081","mp":"Stephen Kinnock MP","signature_count":3},{"name":"Bridgend","ons_code":"W07000086","mp":"Chris Elmore MP","signature_count":8},{"name":"Cardiff West","ons_code":"W07000092","mp":"Mr Alex Barros-Curtis MP","signature_count":2},{"name":"Gower","ons_code":"W07000097","mp":"Tonia Antoniazzi MP","signature_count":1},{"name":"Mid and South Pembrokeshire","ons_code":"W07000100","mp":"Henry Tufnell MP","signature_count":2},{"name":"Montgomeryshire and Glyndŵr","ons_code":"W07000102","mp":"Steve Witherden MP","signature_count":1},{"name":"Rhondda and Ogmore","ons_code":"W07000107","mp":"Chris Bryant MP","signature_count":1},{"name":"Vale of Glamorgan","ons_code":"W07000110","mp":"Kanishka Narayan MP","signature_count":1}],"signatures_by_region":[{"name":"North East","ons_code":"A","signature_count":1},{"name":"North West","ons_code":"B","signature_count":3},{"name":"Yorkshire and The Humber","ons_code":"D","signature_count":22},{"name":"East Midlands","ons_code":"E","signature_count":8},{"name":"West Midlands","ons_code":"F","signature_count":5},{"name":"East of England","ons_code":"G","signature_count":164},{"name":"London","ons_code":"H","signature_count":17},{"name":"South East","ons_code":"J","signature_count":15},{"name":"South West","ons_code":"K","signature_count":10},{"name":"Wales","ons_code":"L","signature_count":19},{"name":"Scotland","ons_code":"M","signature_count":11},{"name":"Northern Ireland","ons_code":"N","signature_count":2}],"other_parliamentary_business":[]}}}