{"links":{"self":"https://petition.parliament.uk/petitions/779705.json"},"data":{"type":"petition","id":779705,"attributes":{"action":"Enact a multi-millionaire wealth tax to fund research for ultra-rare diseases","background":"Enact a wealth tax on multimillionaires and use the revenue to create a ring-fenced NHS and UKRI fund that would finance research, clinical trials and treatments for ultra-rare diseases.","additional_details":"Many families of children with terminal conditions like Sanfilippo syndrome and BPAN have to fundraise millions themselves to finance research trials or foreign care. We believe a child’s survival shouldn’t depend on private fundraising.\r\n \r\nThe Government should create a ring-fenced fund administered by the NHS and UKRI to finance research and development, clinical trials and compassionate treatment access for ultra-rare diseases, which would be sustainably funded through a tax on UK-based individuals with net assets exceeding £10 million.","committee_note":"","state":"open","signature_count":10,"closing_date":"2027-03-16","created_at":"2026-08-15T11:03:55.427Z","updated_at":"2026-09-16T11:50:20.000Z","rejected_at":null,"opened_at":"2026-09-16T09:00:51.584Z","closed_at":null,"moderation_threshold_reached_at":"2026-08-15T19:12:00.000Z","response_threshold_reached_at":null,"government_response_at":null,"debate_threshold_reached_at":null,"debate_scheduled_on":null,"scheduled_debate_date":null,"debate_outcome_at":null,"creator_name":"Dhekelia Matthew-Smith","rejection":null,"government_response":null,"debate":null,"departments":[{"acronym":"DHSC","name":"Department of Health and Social Care","url":"https://www.gov.uk/government/organisations/department-of-health-and-social-care"},{"acronym":"HMT","name":"HM Treasury","url":"https://www.gov.uk/government/organisations/hm-treasury"}],"topics":[],"signatures_by_country":[{"name":"United Kingdom","code":"GB","signature_count":10}],"signatures_by_constituency":[{"name":"Beverley and Holderness","ons_code":"E14001087","mp":"Rt Hon Graham Stuart MP","signature_count":1},{"name":"Canterbury","ons_code":"E14001151","mp":"Rosie Duffield MP","signature_count":4},{"name":"Derby South","ons_code":"E14001194","mp":"Baggy Shanker MP","signature_count":1},{"name":"East Wiltshire","ons_code":"E14001217","mp":"Danny Kruger MP","signature_count":1},{"name":"Gainsborough","ons_code":"E14001243","mp":"Rt Hon Sir Edward Leigh MP","signature_count":2},{"name":"Swansea West","ons_code":"W07000108","mp":"Torsten Bell MP","signature_count":1}],"signatures_by_region":[{"name":"Yorkshire and The Humber","ons_code":"D","signature_count":1},{"name":"East Midlands","ons_code":"E","signature_count":3},{"name":"South East","ons_code":"J","signature_count":4},{"name":"South West","ons_code":"K","signature_count":1},{"name":"Wales","ons_code":"L","signature_count":1}],"other_parliamentary_business":[]}}}