{"links":{"self":"https://petition.parliament.uk/petitions/782410.json"},"data":{"type":"petition","id":782410,"attributes":{"action":"Fund the addition of Krabbe disease in the newborn blood spot programme","background":"We ask the UK Government to assess Krabbe disease for inclusion in the NHS newborn blood spot screening programme, so babies at risk can be identified before symptoms develop and families can access early treatment and specialist care where appropriate.","additional_details":"Krabbe disease is a rare inherited neurological disorder that can cause devastating illness in babies who may initially appear healthy. We believe there is an urgent need for earlier diagnosis. We believe Krabbe disease should be formally assessed for inclusion in newborn blood spot screening, so the UK can determine whether babies could benefit from earlier identification and treatment.","committee_note":"","state":"open","signature_count":315,"closing_date":"2027-04-14","created_at":"2026-09-19T11:05:21.100Z","updated_at":"2026-10-16T16:10:30.000Z","rejected_at":null,"opened_at":"2026-10-14T09:08:29.867Z","closed_at":null,"moderation_threshold_reached_at":"2026-09-19T11:42:00.000Z","response_threshold_reached_at":null,"government_response_at":null,"debate_threshold_reached_at":null,"debate_scheduled_on":null,"scheduled_debate_date":null,"debate_outcome_at":null,"creator_name":"Chloe paterson","rejection":null,"government_response":null,"debate":null,"departments":[{"acronym":"DHSC","name":"Department of Health and Social Care","url":"https://www.gov.uk/government/organisations/department-of-health-and-social-care"}],"topics":[],"signatures_by_country":[{"name":"United Kingdom","code":"GB","signature_count":315}],"signatures_by_constituency":[{"name":"Beaconsfield","ons_code":"E14001082","mp":"Joy Morrissey MP","signature_count":1},{"name":"Beverley and Holderness","ons_code":"E14001087","mp":"Rt Hon Graham Stuart MP","signature_count":18},{"name":"Bradford East","ons_code":"E14001118","mp":"Imran Hussain MP","signature_count":1},{"name":"Bradford South","ons_code":"E14001119","mp":"Judith Cummins MP","signature_count":7},{"name":"Bradford West","ons_code":"E14001120","mp":"Naz Shah MP","signature_count":7},{"name":"Bridlington and The Wolds","ons_code":"E14001127","mp":"Charlie Dewhirst MP","signature_count":39},{"name":"Brigg and Immingham","ons_code":"E14001128","mp":"Martin Vickers MP","signature_count":1},{"name":"Broxbourne","ons_code":"E14001139","mp":"Lewis Cocking MP","signature_count":2},{"name":"Central Devon","ons_code":"E14001155","mp":"Rt Hon Sir Mel Stride MP","signature_count":1},{"name":"Christchurch","ons_code":"E14001171","mp":"Sir Christopher Chope MP","signature_count":1},{"name":"East Wiltshire","ons_code":"E14001217","mp":"Danny Kruger MP","signature_count":1},{"name":"Eltham and Chislehurst","ons_code":"E14001223","mp":"Clive Efford MP","signature_count":1},{"name":"Gillingham and Rainham","ons_code":"E14001246","mp":"Naushabah Khan MP","signature_count":1},{"name":"Goole and Pocklington","ons_code":"E14001250","mp":"Rt Hon David Davis MP","signature_count":26},{"name":"Great Grimsby and Cleethorpes","ons_code":"E14001255","mp":"Melanie Onn MP","signature_count":1},{"name":"Guildford","ons_code":"E14001258","mp":"Zöe Franklin MP","signature_count":1},{"name":"Halifax","ons_code":"E14001262","mp":"Kate Dearden MP","signature_count":2},{"name":"Hertford and Stortford","ons_code":"E14001283","mp":"Josh Dean MP","signature_count":1},{"name":"Keighley and Ilkley","ons_code":"E14001308","mp":"Robbie Moore MP","signature_count":1},{"name":"Kingston upon Hull East","ons_code":"E14001313","mp":"Karl Turner MP","signature_count":32},{"name":"Kingston upon Hull North and Cottingham","ons_code":"E14001314","mp":"Rt Hon Dame Diana Johnson MP","signature_count":56},{"name":"Kingston upon Hull West and Haltemprice","ons_code":"E14001315","mp":"Emma Hardy MP","signature_count":54},{"name":"Kingswinford and South Staffordshire","ons_code":"E14001316","mp":"Mike Wood MP","signature_count":1},{"name":"Knowsley","ons_code":"E14001317","mp":"Rt Hon Anneliese Midgley MP","signature_count":1},{"name":"Leeds Central and Headingley","ons_code":"E14001319","mp":"Alex Sobel MP","signature_count":2},{"name":"Leeds South","ons_code":"E14001323","mp":"Rt Hon Hilary Benn MP","signature_count":1},{"name":"Leeds South West and Morley","ons_code":"E14001324","mp":"Mark Sewards MP","signature_count":1},{"name":"Loughborough","ons_code":"E14001342","mp":"Dr Jeevun Sandher MP","signature_count":2},{"name":"Lowestoft","ons_code":"E14001344","mp":"Jess Asato MP","signature_count":1},{"name":"North Cotswolds","ons_code":"E14001386","mp":"Sir Geoffrey Clifton-Brown MP","signature_count":2},{"name":"Oxford West and Abingdon","ons_code":"E14001420","mp":"Layla Moran MP","signature_count":1},{"name":"Penrith and Solway","ons_code":"E14001424","mp":"Markus Campbell-Savours MP","signature_count":1},{"name":"Pontefract, Castleford and Knottingley","ons_code":"E14001428","mp":"Rt Hon Yvette Cooper MP","signature_count":4},{"name":"Rayleigh and Wickford","ons_code":"E14001437","mp":"Rt Hon Mark Francois MP","signature_count":1},{"name":"Redcar","ons_code":"E14001440","mp":"Rt Hon Anna Turley MP","signature_count":1},{"name":"Rossendale and Darwen","ons_code":"E14001450","mp":"Andy MacNae MP","signature_count":1},{"name":"Scarborough and Whitby","ons_code":"E14001461","mp":"Alison Hume MP","signature_count":20},{"name":"Sevenoaks","ons_code":"E14001465","mp":"Rt Hon Laura Trott MP","signature_count":2},{"name":"Sherwood Forest","ons_code":"E14001471","mp":"Michelle Welsh MP","signature_count":1},{"name":"Shipley","ons_code":"E14001472","mp":"Anna Dixon MP","signature_count":3},{"name":"Skipton and Ripon","ons_code":"E14001475","mp":"Rt Hon Sir Julian Smith MP","signature_count":1},{"name":"Stockton North","ons_code":"E14001518","mp":"Chris McDonald MP","signature_count":1},{"name":"Stoke-on-Trent North","ons_code":"E14001521","mp":"David Williams MP","signature_count":1},{"name":"Thirsk and Malton","ons_code":"E14001544","mp":"Kevin Hollinrake MP","signature_count":5},{"name":"Wakefield and Rothwell","ons_code":"E14001560","mp":"Simon Lightwood MP","signature_count":1},{"name":"Newry and Armagh","ons_code":"N05000011","mp":"Dáire Hughes MP","signature_count":1},{"name":"Arbroath and Broughty Ferry","ons_code":"S14000066","mp":"Lara Bird MP","signature_count":1},{"name":"Dundee Central","ons_code":"S14000075","mp":"Chris Law MP","signature_count":2}],"signatures_by_region":[{"name":"North East","ons_code":"A","signature_count":2},{"name":"North West","ons_code":"B","signature_count":3},{"name":"Yorkshire and The Humber","ons_code":"D","signature_count":283},{"name":"East Midlands","ons_code":"E","signature_count":3},{"name":"West Midlands","ons_code":"F","signature_count":2},{"name":"East of England","ons_code":"G","signature_count":5},{"name":"London","ons_code":"H","signature_count":1},{"name":"South East","ons_code":"J","signature_count":6},{"name":"South West","ons_code":"K","signature_count":5},{"name":"Scotland","ons_code":"M","signature_count":3},{"name":"Northern Ireland","ons_code":"N","signature_count":1}],"other_parliamentary_business":[]}}}