{"links":{"self":"https://petition.parliament.uk/petitions/784040.json"},"data":{"type":"petition","id":784040,"attributes":{"action":"Fund rebisufligene etisparvovec-hopf access for children with Sanfilippo type A","background":"We ask the Government to urgently fund rebisufligene etisparvovec-hopf for eligible children with Sanfilippo syndrome Type A, working with relevant authorities and manufacturers to establish the fastest possible route to treatment.","additional_details":"Sanfilippo Type A is a rare, progressive childhood dementia. UK children currently cannot access rebisufligene etisparvovec-hopf for their treatment. We are asking the Government to urgently provide funding to allow eligible children to access this treatment. Sanfilippo causes irreversible loss of skills, so families cannot afford years of delay. Every day matters.","committee_note":"","state":"open","signature_count":306,"closing_date":"2027-04-30","created_at":"2026-10-08T09:12:26.595Z","updated_at":"2026-10-30T23:41:20.000Z","rejected_at":null,"opened_at":"2026-10-30T09:55:57.009Z","closed_at":null,"moderation_threshold_reached_at":"2026-10-08T09:24:00.000Z","response_threshold_reached_at":null,"government_response_at":null,"debate_threshold_reached_at":null,"debate_scheduled_on":null,"scheduled_debate_date":null,"debate_outcome_at":null,"creator_name":"Georgia Nonas","rejection":null,"government_response":null,"debate":null,"departments":[{"acronym":"DHSC","name":"Department of Health and Social Care","url":"https://www.gov.uk/government/organisations/department-of-health-and-social-care"}],"topics":[],"signatures_by_country":[{"name":"United Kingdom","code":"GB","signature_count":306}],"signatures_by_constituency":[{"name":"Beckenham and Penge","ons_code":"E14001083","mp":"Liam Conlon MP","signature_count":1},{"name":"Beverley and Holderness","ons_code":"E14001087","mp":"Rt Hon Graham Stuart MP","signature_count":1},{"name":"Birmingham Northfield","ons_code":"E14001097","mp":"Laurence Turner MP","signature_count":1},{"name":"Blaydon and Consett","ons_code":"E14001106","mp":"Liz Twist MP","signature_count":10},{"name":"Blyth and Ashington","ons_code":"E14001107","mp":"Ian Lavery MP","signature_count":3},{"name":"Bridlington and The Wolds","ons_code":"E14001127","mp":"Charlie Dewhirst MP","signature_count":1},{"name":"Carlisle","ons_code":"E14001152","mp":"Ms Julie Minns MP","signature_count":1},{"name":"Chester North and Neston","ons_code":"E14001163","mp":"Samantha Dixon MP","signature_count":7},{"name":"Chester South and Eddisbury","ons_code":"E14001164","mp":"Aphra Brandreth MP","signature_count":1},{"name":"Christchurch","ons_code":"E14001171","mp":"Sir Christopher Chope MP","signature_count":1},{"name":"Cramlington and Killingworth","ons_code":"E14001183","mp":"Emma Foody MP","signature_count":6},{"name":"Dulwich and West Norwood","ons_code":"E14001205","mp":"Helen Hayes MP","signature_count":1},{"name":"Ellesmere Port and Bromborough","ons_code":"E14001222","mp":"Justin Madders MP","signature_count":101},{"name":"Esher and Walton","ons_code":"E14001230","mp":"Monica Harding MP","signature_count":1},{"name":"Gateshead Central and Whickham","ons_code":"E14001244","mp":"Mark Ferguson MP","signature_count":50},{"name":"Hexham","ons_code":"E14001285","mp":"Joe Morris MP","signature_count":2},{"name":"Horsham","ons_code":"E14001294","mp":"John Milne MP","signature_count":1},{"name":"Houghton and Sunderland South","ons_code":"E14001295","mp":"Rt Hon Bridget Phillipson MP","signature_count":6},{"name":"Jarrow and Gateshead East","ons_code":"E14001307","mp":"Kate Osborne MP","signature_count":23},{"name":"Knowsley","ons_code":"E14001317","mp":"Rt Hon Anneliese Midgley MP","signature_count":1},{"name":"Liverpool Riverside","ons_code":"E14001338","mp":"Kim Johnson MP","signature_count":1},{"name":"Loughborough","ons_code":"E14001342","mp":"Dr Jeevun Sandher MP","signature_count":3},{"name":"Mansfield","ons_code":"E14001355","mp":"Steve Yemm MP","signature_count":1},{"name":"Newcastle upon Tyne Central and West","ons_code":"E14001377","mp":"Dame Chi Onwurah MP","signature_count":5},{"name":"Newcastle upon Tyne East and Wallsend","ons_code":"E14001378","mp":"Mary Glindon MP","signature_count":5},{"name":"Newcastle upon Tyne North","ons_code":"E14001379","mp":"Catherine McKinnell MP","signature_count":1},{"name":"North Durham","ons_code":"E14001389","mp":"Luke Akehurst MP","signature_count":12},{"name":"North Northumberland","ons_code":"E14001397","mp":"David Smith MP","signature_count":3},{"name":"North West Hampshire","ons_code":"E14001403","mp":"Rt Hon Kit Malthouse MP","signature_count":1},{"name":"Penistone and Stocksbridge","ons_code":"E14001423","mp":"Dr Marie Tidball MP","signature_count":1},{"name":"Ribble Valley","ons_code":"E14001443","mp":"Maya Ellis MP","signature_count":1},{"name":"Romsey and Southampton North","ons_code":"E14001449","mp":"Rt Hon Caroline Nokes MP","signature_count":1},{"name":"Rugby","ons_code":"E14001453","mp":"John Slinger MP","signature_count":1},{"name":"Runcorn and Helsby","ons_code":"E14001455","mp":"Sarah Pochin MP","signature_count":5},{"name":"Sevenoaks","ons_code":"E14001465","mp":"Rt Hon Laura Trott MP","signature_count":1},{"name":"South Shields","ons_code":"E14001492","mp":"Emma Lewell MP","signature_count":4},{"name":"Southgate and Wood Green","ons_code":"E14001503","mp":"Bambos Charalambous MP","signature_count":1},{"name":"Sunderland Central","ons_code":"E14001531","mp":"Lewis Atkinson MP","signature_count":2},{"name":"Thirsk and Malton","ons_code":"E14001544","mp":"Kevin Hollinrake MP","signature_count":1},{"name":"Tynemouth","ons_code":"E14001557","mp":"Rt Hon Sir Alan Campbell MP","signature_count":2},{"name":"Warrington South","ons_code":"E14001565","mp":"Sarah Hall MP","signature_count":3},{"name":"Washington and Gateshead South","ons_code":"E14001567","mp":"Mrs Sharon Hodgson MP","signature_count":18},{"name":"Wirral West","ons_code":"E14001589","mp":"Matthew Patrick MP","signature_count":3},{"name":"Worsley and Eccles","ons_code":"E14001598","mp":"Michael Wheeler MP","signature_count":1},{"name":"Edinburgh East and Musselburgh","ons_code":"S14000078","mp":"Chris Murray MP","signature_count":1},{"name":"Alyn and Deeside","ons_code":"W07000082","mp":"Rt Hon Sir Mark Tami MP","signature_count":2},{"name":"Bangor Aberconwy","ons_code":"W07000083","mp":"Claire Hughes MP","signature_count":1},{"name":"Clwyd East","ons_code":"W07000094","mp":"Becky Gittins MP","signature_count":2},{"name":"Wrexham","ons_code":"W07000111","mp":"Andrew Ranger MP","signature_count":3}],"signatures_by_region":[{"name":"North East","ons_code":"A","signature_count":152},{"name":"North West","ons_code":"B","signature_count":125},{"name":"Yorkshire and The Humber","ons_code":"D","signature_count":4},{"name":"East Midlands","ons_code":"E","signature_count":4},{"name":"West Midlands","ons_code":"F","signature_count":2},{"name":"London","ons_code":"H","signature_count":3},{"name":"South East","ons_code":"J","signature_count":5},{"name":"South West","ons_code":"K","signature_count":1},{"name":"Wales","ons_code":"L","signature_count":8},{"name":"Scotland","ons_code":"M","signature_count":1}],"other_parliamentary_business":[]}}}