This petition was submitted during the 2015-2017 parliament
Petition Sufferers of rare cancers to have free access to new cutting edge treatments
Petition The Right Honorable Jeremy Hunt to persuade NICE to allow sufferers of rare cancers to have free access to new cutting edge treatments that are freely available to sufferers of more common cancers, such as Melanoma. My wife Beryl has a very rare Small Cell Carcinoma of the Ovary.
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Following 13 cycles of chemotherapy Beryl is now undergoing an experimental course of immunotherapy in the form of "Pembrolizumab". Had Beryl been suffering from Melanoma she would have been able to access Pembrolizumab for free on the NHS. Although NICE have licensed Pembrolizumab for Melanoma, it is not licensed for her type of cancer. There are not enough sufferers to support a formal trial. We find the decision not to fund Beryl's, and other rare cancer sufferers', care very unjust.
This petition is closed This petition ran for 6 months
746 signatures
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