This petition was submitted during the 2010 to 2015 Parliament
Closed petition Duchenne Muscular Dystrophy standards of care
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Duchenne Muscular Dystrophy is the most common, fatal genetic condition in children but in Denmark, life expectancy is twice that in the United Kingdom. We, the undersigned, demand an urgent public inquiry into Duchenne care in the United Kingdom, so that poor practices can be fully investigated and a robust comparison of the British and Danish care models undertaken.
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This petition will stay open until 21 September 2012.