This petition was submitted during the 2015-2017 parliament
Rejected petition Put a stop to the extortionate prices that medical drug companies charge
Inaayas Story. 3 month old baby girl diagnosed with Wolmans Disease, currently in Birmingham Children's Hospital. NHS refuse to pay for treatment, and family have to pay £6k a week for medication.
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Wolmans Disease can not be cured, but requires treatment on a weekly basis for the rest of the life of the sufferer. The NHS have refused to fund the treatment for this baby girl. And have been quoted £6k a week to pay to have their daughter have my quality of life, and she may not see her first birthday and will die of malnourishment without the treatment.
This petition was rejected
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