Petition Augmentation Therapy For Rare Genetic Conditions

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Alpha 1 Antitrypsin Deficiency (A1AD) is a rare genetic condition causing the liver to produce zero to low levels of Antitrypsin mostly causing severe lung deterioration & or cancer of the liver and sometimes a rare terminal skin condition. There are 300 children suffering from A1AD at present no A1AD patients in the UK receive augmentation therapy bringing the level of Antitrypsin up to normal levels of protection. Appeal for augmentation therapy for rare genetic conditions in the UK.

This petition is closed This petition ran for 6 months

147 signatures

Progress of the petition towards its next target: 147 of 10,000 signatures required to get a government response

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10,000 signatures required to get a government response

Date closed 7 October 2012
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