Petition Raise awareness about a newly found Genetic Condition EBF3-HADDS

I am starting this online petition for the UK government to Raise more awareness about this newly found Genetic Condition syndrome called EBF3-HADDS.
This rare mutations in the gene has just recently been found so very little is know. About it. Help us raise more awareness about it please.

More details

https://ebf3blog.wordpress.com

This petition is closed This petition ran for 6 months

54 signatures

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10,000

Date closed 14 May 2019
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