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Closed Introduce new-born screening for Adrenoleukodystrophy in hospitals across the UK

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This petition is to introduce screening for all new-borns across the UK for the genetic condition ALD, if the disease is found early on it is less likely to be terminal and can be treated.

Adrenoleukodystrophy (ALD) affects 1 in 17,000 individuals (males and females) worldwide.

References:
https://www.alextlc.org/what-is-a-leukodystrophy/the-different-leukodystrophies/
https://www.derbyshiretimes.co.uk/news/chesterfield-fc-give-brave-young-boy-10-with-rare-genetic-brain-disease-chance-to-lead-out-spireites-on-saturday-1-9674806
https://www.newbornscreening.info/Parents/otherdisorders/X-ALD.html

663 signatures

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10,000

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  • Petition published

    This petition can now be signed.

    If this petition gets 10,000 signatures, government will respond to it.

    If this petition gets 100,000 signatures, it will be considered for debate in Parliament.

    This petition will stay open until 6 November 2019.