This petition was submitted during the 2019-2024 parliament
Rejected petition Amend NICE guideline NG159 and clarify use of the Clinical Frailty Score (CFS).
NICE NG159 is not clear that the CFS should apply to adults only and not children. The CFS and NG159 need specific guidance on learning disability to make it clear that healthcare professionals should not judge adult patients on their cognitive ability when making life or death decisions.
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The Clinical Frailty Score and Guidance NG159 as is could result in patients with a learning disability not getting equal access to critical care and potentially dying avoidably.
This petition was rejected
Why was this petition rejected?
It’s about something that the UK Government or Parliament is not directly responsible for.
The National Institute for Health and Care Excellence is an executive non-departmental public body, so the content of guidance produced by NICE is an operational matter for NICE, not the Government or Parliament.
Nonetheless, since you started your petition, this guidance has been amended, and is now clear the guidance and assessment of frailty relates only to adults, and should not be used for people with learning disabilities: https://www.nice.org.uk/guidance/ng159/chapter/1-Admission-to-hospital
You can find out more about coronavirus and how you can protect yourself and others here:
www.gov.uk/coronavirus
https://www.nhs.uk/conditions/coronavirus-covid-19/
The Government has also created an online service to help you out what you can do if you’re struggling because of coronavirus: https://www.gov.uk/find-coronavirus-support
You can read NHS tips to help if you are worried about coronavirus here: https://www.nhs.uk/oneyou/every-mind-matters/coronavirus-covid-19-anxiety-tips
You can read impartial analysis of the Government response to coronavirus and policy developments here:
https://commonslibrary.parliament.uk/coronavirus/
You may also be interested to know that because of the large number of petitions that have been started in relation to coronavirus, the Petitions Committee has been questioning the Government about its response to the coronavirus outbreak.
Find out more and watch the Committee put questions suggested by petitioners to Government Ministers and the Deputy Chief Medical Officer: https://committees.parliament.uk/committee/326/petitions-committee/news/145767/committee-question-deputy-chief-medical-officer-and-ministers-on-coronavirus-response/
Read letters asking further questions of Government Ministers: https://committees.parliament.uk/committee/326/petitions-committee/publications/3/correspondence/
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