Rejected petition EHLERS-DANLOS SYNDROME BETHANIES BATTLE

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EHLERS-DANLOS SYNDROME (EDS) IS A GENETIC TISSUE CONDITION WHICH IS THOUGHT 1 IN 5,000 PEOLPE ONLY ARE KNOWN TO HAVE THIS CONDITION, THERE ARE STILL MANY AFFECTED PEOPLE WHO HAVE BEEN MISDIAGNOSED AND LIKEWISE RECIEVED IN CORRECT TREATMENT, MANY A GP DOES NOT UNDERSTAND THAT IT CAN EFFECT THE WHOLE BODY INTERNAL ORGANS AND SYSTEMS, MANY RELY ON FEEDING TUBES..PLEASE HELP TO MAKE OUR DEBILITATING INVISABLE.ILLNESS... VISABLE BY SIGNING TO HELP THE UK PLAN FOR RARE DISEASES.

This petition was rejected

Why was this petition rejected?

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Date submitted 18 December 2012
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