This petition was submitted during the 2010-2015 parliament
Petition Government funding for rare genetic diseases such as Juvenile Batten's
More details
Juvenile Batten disease is an inherited disorder that primarily affects the nervous system. Beginning in childhood, affected individuals develop progressive vision loss, seizures, and intellectual decline.
Vision loss is often the first noticeable sign of juvenile Batten disease, beginning between the ages of 4 and 8 years. Vision loss tends to worsen rapidly, leading to blindness. Recurrent seizures begin between the ages of 5 and 18 years.
This petition is closed This petition ran for 6 months
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