Petition The Travis Trust - Prenatal Screening for Spinal Muscular Atrophy

More details

Spinal Muscular Atrophy Type 1 is the biggest genetic killer of babies under the age of 2. Currently there is no known cure.

Our beautiful baby boy passed away at 7 months old due to this cruel disease.

Although there is currently no treatment, or cure for SMA. Testing can be done at 12 weeks via CVS to determine if the baby has SMA, but currently its not on the list of prenatal tests.

This disease is devasting, for the families & most importantly the babies that it affects. Testing for Spinal Muscular Atrophy needs to be added to the prenatal tests done, so more babies and families do not have to go through the same things we did.

This petition is closed This petition ran for 6 months

334 signatures

Progress of the petition towards its next target: 334 of 10,000 signatures required to get a government response

Show on a map the geographical breakdown of signatures by constituency

10,000 signatures required to get a government response

Date closed 24 October 2014
Get petition data (json format)

About petition data

The data shows the number of people who have signed the petition by country as well as in the constituency of each Member of Parliament. This data is available for all petitions on the site. It is not a list of people who have signed the petition. The only name that is shared on the site is that of the petition creator.