This petition was submitted during the 2010 to 2015 Parliament
Closed petition SMA type 1 children to be given tracheostomy if and when needed!
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My little girl has a non-curable disease called Spinal Muscular Atrophy, type 1! Doctors told me she wouldn't live passed her 1st birthday, but is now 19 months old.
Up until now, she has been fine. But recently she developed a chest infection and has became very ill.
Doctors are refusing to give her life saving treatment, as they feel she has no quality of life!! (Couldn't be more wrong!!)
This petition is to request every child with SMA type 1, to be given the necessary treatment to help them survive!
Thanks xx
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This petition will stay open until 12 February 2014.