This petition was submitted during the 2019-2024 parliament
Rejected petition Speed up the License medication process through NICE to help HD sufferers
To try and speed up the process of Licensing medication that are near the end of the trial stages, that have shown success, through NICE to help sufferers of this neuro-degenerative disease.
More details
This is a devastating genetic disease that decimates families all around the world and the UK. The child of any Huntington's Disease sufferer is at a 50% risk of inheriting this disease. This affects adults and children in the cruelest way, its a brain eating disease that costs the NHS and social care £22,000 annually for any 1 person suffering. Licensing this medication would drive these costs down tremendously.
This petition was rejected
Why was this petition rejected?
It’s not clear what the petition is asking the UK Government or Parliament to do.
Petitions need to call on the Government or Parliament to take a specific action. We're not sure exactly what you'd like the Government or Parliament to do.
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You might like to know that NICE are currently conducting a review of the methods and processes they use to assess new medicines and other health technologies, with the aim of speeding up patient access to these interventions, and simplifying the processes by which they evaluate them. You can find out more at:
https://www.nice.org.uk/about/what-we-do/our-programmes/nice-guidance/nice-technology-appraisal-guidance/changes-to-health-technology-evaluation
We only reject petitions that don’t meet the petition standards.