This petition was submitted during the 2019-2024 parliament
Petition Increase funding for research into and treatment of STXBP1 encephalopathy
STXBP1 encephalopathy is a rare genetic condition characterized by abnormal brain function (encephalopathy) and intellectual disability.
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We want the Government to increase funding for research into and treatment of STXBP1 encephalopathy, to help sufferers and their families.
We believe the NHS is far behind other countries in their knowledge of and treatment available for this terrible condition. Additional funding could held address this gap, and identify new treatments.
This petition is closed This petition ran for 6 months
111 signatures
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10,000 signatures required to get a government response