Petition Cutbacks Against Raredisease

Raredisease effects children and adults it is underfunded worldwide we see cutbacks in the NHS and DLA that will effect children and audults with rarediseases drug companys call children with rare disease orphan diseases funding for rarediseases must be ringfenced against all cuts with in the health service and funing into reasearch must be ringfenced people with rare diseases have to wait for diagnosis sometimes for months and even longer Raredisease is now not so reae and childen and adults who have rare disease need all the support they can be given both in DLA and in Treatment and Research