Petition Make treatment for Tarlov Cyst Disease available on the NHS.

Also known as perineurial cyst or sacral nerve root cyst, the Tarlov Cyst is a dilation of the nerve root sheath or outer covering of the nerve. Cerebral spinal fluid gets trapped inside the sheath and forms a cyst. The fluid in the cyst can put pressure on the nerve and cause debilitating symptoms.

More details

The cyst is the nerve and therefore cannot be cut out. When the neurological symptoms become severe and the sacrum is eroding and remodeling, surgery may be the treatment of choice.
The surgery is not available under the NHS, either routinely or through specialised commissioning because of a lack of evidence for its effectiveness.
UK citizens have to pay up to 30.000 £ for a private surgery abroad(Cyprus or USA).
http://tarlovcyst.co.uk/
http://www.tarlovcystfoundation.org/home0.aspx

This petition is closed This petition ran for 6 months

314 signatures

Progress of the petition towards its next target: 314 of 10,000 signatures required to get a government response

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10,000 signatures required to get a government response

Date closed 29 March 2016
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