This petition was submitted during the 2015–2017 Conservative government
Petition Ehler Danlos Syndrome NEEDS doctors knowledge! FUND IT!
Ehlers Danlos Syndrome has different types, the common link between them is Pain. Most people affected by this illness aren't diagnosed until later on in their lives.It is mostly an invisible illness and can ruin your life completely. THERE IS NO CURE! Most doctors don't know what it is.#makeachange
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I suffer from ehler danlos syndrome and life is hard at the best of times, when something goes wrong you would think a doctor to know at least a bit of background about it. NOT EDS! This is horrifying as so many people go undiagnosed and refused the help they need to manage it! Not all of us with EDS can make it to America for treatment so we need something set up to help people in the 🇬🇧. Every time a doctor says "i don't know what that is" it saddens me. Please help to change this😔
This petition closed early because of a General Election Find out more on the Petitions Committee website