Petition Stop decision to deny access to new medicines for those with ultra-rare diseases

NICE and NHS England’s decision to deny access to new medicines from 1 April 2017 for those suffering from ultra-rare diseases, is about to change the lives of thousands of vulnerable, ill people all over England. Medical treatments will be denied, thus condemning those affected to an early death.

More details

http://www.mpssociety.org.uk/2017/03/28/press-release-nice-nhs-englands-decision-deny-access-new-medicines-no-april-fools-joke/
This is specific to MPS and related diseases, but there are many other ultra-rare diseases within England which also be affected, this petition is to cover all of these diseases. This petition is not to condemn the whole proposal made by NICE and NHS, but to amend decisions within it, mainly the access to new medicines.
More information can be found via the NICE website

This petition closed early because of a General Election Find out more on the Petitions Committee website

22 signatures

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10,000

Date closed 3 May 2017
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