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Closed Fund treatment of Spinal Muscular Atrophy with Spinraza

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Many countries across the world, including some significantly smaller economies such as Poland and Slovakia are providing children and adults access to Spinraza for the treatment of SMA. It is vital that this treatment is made accessible to sufferers in England.

There is increasing evidence that not only does the treatment help young children, particularly type 1 sufferers, but that it also halts progression in adults. SMA is effectively a slow death sentence for those afflicted and sufferers should be given the right to be able to slow the progression in order to live as full a life as possible.

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  • Petition closed

  • Petition published

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    If this petition gets 10,000 signatures, government will respond to it.

    If this petition gets 100,000 signatures, it will be considered for debate in Parliament.

    This petition will stay open until 1 August 2019.