This petition was submitted during the 2017–2019 Conservative government

Petition Make Kuvan available on the NHS

Phenylketonuria (PKU) is an inborn error of metabolism that results in decreased metabolism of the amino acid phenylalanine. Untreated, PKU can lead to intellectual disability, seizures, behavioral problems, and mental disorders. It may also result in a musty smell and lighter skin.

More details

This drug can literally change the lives of people with phenylketonuria (PKU). In addition, please continue research to find solutions for this debilitating condition.

https://www.nhs.uk/conditions/phenylketonuria

This petition closed early because of a General Election Find out more on the Petitions Committee website

325 signatures

Show on a map

10,000