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Closed Make prescriptions free for everyone with Cystic Fibrosis

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Back in 1968 people with CF were not included on the medical exemption list as children with cf were not expected to make it to adulthood. Now the median life expectancy for those living with cystic fibrosis is 37. This lack of an exemption needs to be revised.

Many people in the UK with cystic fibrosis have to pay prescription charges. I feel this is so wrong when a lot of others are exempt yet some with cystic fibrosis are expected to pay. Some people with CF have to take up to 11 different types of tablets a day, without antibiotics. Why should they be made to pay for prescriptions? We need to make this change. It’s hard enough living with cystic fibrosis, let alone having to find the money to pay for all prescriptions or a yearly payment.

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  • Related activity

    Share your experience of prescription charges for cystic fibrosis

    On Wednesday 2 February, Paul Maynard MP will lead a Westminster Hall debate in Parliament on prescription charge exemptions and cystic fibrosis.

    To inform the debate, he wants to hear about your experiences. He may quote your contribution directly during his debate. 

    Find out more and share your experiences with him here: https://ukparliament.shorthandstories.com/cystic-fibrosis-prescriptions/index.html?utm_campaign=0122-cet-cysticfibrosisprescriptions-petitioners&utm_medium=email&utm_source=petcom

    The deadline for contributions, which was 12noon, has been extended to 5pm on Tuesday, 1 February.

    Videos of the debate, the transcript and other relevant material will be accessible from 2 February on this webpage. 

    What are Westminster Hall debates?  

    Westminster Hall is the second Chamber of the House of Commons.   

    Westminster Hall debates give MPs an opportunity to raise local or national issues and receive a response from a government minister. Any MP can take part in a Westminster Hall debate.  

    Debates in Westminster Hall take place on ‘general debate' motions expressed in neutral terms. These motions are worded ‘That this House has considered [a specific matter]'.

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    If this petition gets 10,000 signatures, government will respond to it.

    If this petition gets 100,000 signatures, it will be considered for debate in Parliament.

    This petition will stay open until 27 February 2021.