Coronavirus (COVID-19)

What you need to do

What the Petitions Committee is doing

Petition Fund Spinraza for all SMA patients on the NHS

Spinal Muscular Atrophy (SMA) is a serious degenerative condition that can be treated with Spinraza. Yet NICE’s Managed Access Agreement for Spinraza means many SMA patients can't access it on the NHS. The Government, NHS England & NICE should make Spinraza available for all SMA patients.

More details

Jake Ogborne is one of hundreds of SMA patients who could benefit from accessing Spinraza, but who does not meet eligibility criteria for getting it on the NHS. Hear his story at and in this article at
Campaign groups such as TreatSMA have long advocated for Spinraza to be accessible for all SMA patients:
Biogen, Spinraza's manufacturer, has collected data to demonstrate its effectiveness for excluded patients:

Sign this petition

4,858 signatures

Show on a map


At 10,000 signatures...

At 10,000 signatures, government will respond to this petition

At 100,000 signatures...

At 100,000 signatures, this petition will be considered for debate in Parliament

Share this petition