This petition was submitted during the 2019-2024 parliament
Petition Fund access to Kaftrio for CF patients in England in line with other UK nations
In Scotland, Wales and Northern Ireland the NHS is providing Kaftrio in line with US FDA regulations, in which anyone with one F508 gene and any other second gene can have Kaftrio, which has been proven to slow the decline of lung function, the primary cause of death for people with CF.
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However, in England, still only patients with one F508 and certain other genes can access Kaftrio, leaving some patients deprived of living a life unlimited. The Government should work with NHS England (like they did with Orkambi) and/or provide specific extra funding to make this lifesaving drug available for people with Cystic Fibrosis with one F508 mutation, regardless of their second mutation.
This petition is closed This petition ran for 6 months
Related activity
Share your experience of prescription charges for cystic fibrosis
On Wednesday 2 February, Paul Maynard MP will lead a Westminster Hall debate in Parliament on prescription charge exemption and cystic fibrosis.
To inform the debate, he wants to hear about your experiences. He may quote your contribution directly during his debate.
Find out more and share your experiences with him here: https://ukparliament.shorthandstories.com/cystic-fibrosis-prescriptions/index.html?utm_campaign=0122-cet-cysticfibrosisprescriptions-petitioners&utm_medium=email&utm_source=petcom
The deadline for contributions is midday on Tuesday, 1 February.
Videos of the debate, the transcript and other relevant material will be accessible from 2 February on this webpage.
What are Westminster Hall debates?
Westminster Hall is the second Chamber of the House of Commons.
Westminster Hall debates give MPs an opportunity to raise local or national issues and receive a response from a government minister. Any MP can take part in a Westminster Hall debate.
Debates in Westminster Hall take place on ‘general debate' motions expressed in neutral terms. These motions are worded ‘That this House has considered [a specific matter]'.