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Closed Fund a national awareness campaign for NMOSD

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The Government should fund a national awareness campaign, centred around ‘NMOSD month’ to be held in March, for neuromyelitis optica spectrum disorder (NMOSD).

NMOSD is a rare neurological condition, it is estimated that it currently affects less than 1,000 people in the UK. Disease awareness is vital to enable optimal patient diagnosis, support and long-term care.

NMOSD can cause irreversible damage to the optic nerve, spinal cord, brain and brain stem. Lack of awareness often slows down the diagnosis process or leads to misdiagnosis. An acute attack, if left untreated, puts a patient at high risk of permanent disability or worse, death. Misdiagnosis is also of great consequence to patients. It's important that awareness among the public and health care professionals is increased, to enable prompt diagnosis, treatment and support to patients and their caregivers.

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  • Related activity

    Share your experiences of accessing health services for neurological conditions

    On Thursday 9 June, Lord Dubs will lead a debate in Parliament on accessing health and care services for neurological conditions.

    To inform the debate, he would like to hear about your experiences of neurological services, and what changes you would make to improve them. He may talk about the information you share with us in the debate, which people will be able to watch online. Sometimes thousands of people watch debates and the things that Members of the House of Lords say might be reported in the press.

    Don't tell us anything that you don't want to be made public.

    Find out more and share your experience with him by midday on Wednesday 8 June: https://ukparliament.shorthandstories.com/neurologicalconditions/index.html?utm_campaign=0522-cet-neurologicalconditions-petitioners&utm_medium=email&utm_source=petcom

    Videos of the debate - known as a Question for Short Debate (QSD), the transcript of what was said in it, and other relevant material will be accessible shortly after the debate on this webpage.

    What is a Question for Short Debate?

    Four short debates ('Questions for Short Debate') take place on Thursday every five weeks in Grand Committee of the House of Lords, away from the main Chamber. These debates generally last 50-60 minutes, and are an opportunity for members of the House of Lords to discuss important current issues and draw the Government’s attention to concerns. A Government minister or spokesperson responds at the end to the issues raised in the debate.

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    This petition will stay open until 23 August 2022.