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This petition was submitted during the 2019 to 2024 Parliament

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Closed Require NHS use an "opt-in" system to use patient data for planning or research

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The NHS has introduced an "opt-out" system to enable patients to opt out from their data being used for research or planning purposes. We want the NHS to be required to implement an "opt-in" system, so patients are required to give active consent to their data being used for planning or research.

To enable informed consent, the NHS should be required to:

1- Inform patients exactly who may be using their data.
2- Explain what exactly any research is for
3- Provide assurances that data won't be used for any other research, or be shared or sold.

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    If this petition gets 10,000 signatures, government will respond to it.

    If this petition gets 100,000 signatures, it will be considered for debate in Parliament.

    This petition will stay open until 18 October 2022.