This petition was submitted during the 2019-2024 parliament

Petition Require NHS use an "opt-in" system to use patient data for planning or research

The NHS has introduced an "opt-out" system to enable patients to opt out from their data being used for research or planning purposes. We want the NHS to be required to implement an "opt-in" system, so patients are required to give active consent to their data being used for planning or research.

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To enable informed consent, the NHS should be required to:

1- Inform patients exactly who may be using their data.
2- Explain what exactly any research is for
3- Provide assurances that data won't be used for any other research, or be shared or sold.

This petition is closed This petition ran for 6 months

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