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Closed Increase funding for rare cancer research & treatment

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I was diagnosed with a rare cancer in 2022, since then I have met other patients in the same situation.

With no body of evidence to support the development of treatments via NICE the NHS may not fund treatment that has been proven to work for other cancers so we may have to crowd fund, apply to charity, wait for clinical trials or beg to access life saving intervention.

Alongside this we feel staff knowledge is scarce and poor creating high anxiety and sparse access to any help. This must stop.

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  • Related activity

    Share your insights for a debate: 'Impact of NHS workforce levels on cancer patients'

    On Thursday 23 October, Clive Jones MP will lead a debate in Parliament entitled 'Impact of NHS workforce levels on cancer patients'.

    To inform it, he would like to hear from anyone with relevant experience or insights related to the NHS cancer care workforce. 

    Find out more

    Survey deadline: midday on 22 October.  

    He may quote your response directly during his debate.

    From 23 October, you can: 

    • Watch the debate 
    • Read the transcript 
    • See other relevant material 

     Just use the link above. 

    Explainer

    This is a debate in Westminster Hall, scheduled by the Backbench Business Committee.  

    These debates give MPs an opportunity to debate a topic of their choice, and receive a response from the Government.

    They are a way to: 

    • raise awareness of an issue
    • seek to influence government policy
    • put the views of backbench MPs, political parties, and the Government on record.

    They do not generally involve a vote on a particular action or decision.

    See our visual explainer on how debates in Westminster Hall work.

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