Petition Fund NHS access to Tofersen for all people with SOD-1 Motor Neuron Disease

We call on the Government to fund universal, NHS access to the life-extending medication Tofersen for all people who have been diagnosed with SOD-1 Motor Neuron Disease.

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We are asking for the Government to make Tofersen available to all who would benefit from treatment. The medication has been proven to extend lifespan, and in some cases stop progression of symptoms. We believe the current situation is unethical.

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53 signatures

Progress of the petition towards its next target: 53 of 10,000 signatures required to get a government response

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Created by Graeme Field
Deadline 17 June 2026 All petitions run for 6 months
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