UK Parliament home

Closed Fund NHS access to Tofersen for all people with SOD-1 Motor Neuron Disease

Closed on

We call on the Government to fund universal, NHS access to the life-extending medication Tofersen for all people who have been diagnosed with SOD-1 Motor Neuron Disease.

We are asking for the Government to make Tofersen available to all who would benefit from treatment. The medication has been proven to extend lifespan, and in some cases stop progression of symptoms. We believe the current situation is unethical.

57 signatures

Show on a map

10,000

Petition progress

View all updates for this petition, with the most recent first.

  • Petition closed

  • Petition published

    This petition can now be signed.

    If this petition gets 10,000 signatures, government will respond to it.

    If this petition gets 100,000 signatures, it will be considered for debate in Parliament.

    This petition will stay open until 17 June 2026.