Rejected petition Let Scottish Fontan Patients Stay Home for Life-Saving Heart Transplants

I was born with Tricuspid atresia unventriculated heart disease. I survived because of the Fontan heart bypass and Extra Cardiac Fontan heart surgery. Fontan circulation is not a cure it fails. When it does a heart, lungs and/or liver transplant is the only way to live.

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Scottish Fontan patients are forced to leave Scotland for life saving transplants separating us from family and support at the most terrifying time of our lives. This is not choice it is a failure of the system. NHS Scotland must allow Fontan patients to be assessed and transplanted in Scotland.
Let us fight for our lives at home.
We are not numbers or referrals. We are people terrified of dying far from home, asking for the chance to live — with dignity, love and support — in Scotland at Home.

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Date submitted 9 January 2026
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