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Open Review need for a national standard of care for children with cerebral palsy

Created by James Hotham
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NHS England introduced a Cerebral Palsy Commissioning Framework in 2025, but it has only been piloted in some Integrated Care Boards and not adopted nationwide.

We call for full implementation of a national minimum standard of care, guaranteeing access to therapy, orthopaedics, complex movement clinics, named care coordinators, early intervention, clear waiting times, and support for UK research including stem cell trials. These changes could be known as Frankie's Future.

Many children still face a postcode lottery for care, with families forced to fight for support during crucial early years.

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  • Related activity

    National service specification for adult cerebral palsy in the NHS: debate in Parliament

    On 10 March, MPs held a debate entitled 'National service specification for adult cerebral palsy in the NHS.'

    This was a Westminster Hall debate led by Daniel Francis MP. Health Minister Stephen Kinnock MP responded on behalf of the Government.

    Explainer

    Westminster Hall debates give MPs an opportunity to debate a topic of their choice, and receive a response from the Government.

    They are a way to:

    • raise awareness of an issue
    • seek to influence government policy
    • put the views of backbench MPs, political parties, and the Government on record.

    They do not involve a vote on a particular action or decision.

    See our visual explainer on how these debates work.

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    This petition can now be signed.

    If this petition gets 10,000 signatures, government will respond to it.

    If this petition gets 100,000 signatures, it will be considered for debate in Parliament.

    This petition will stay open until 24 August 2026.