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Open Enact a multi-millionaire wealth tax to fund research for ultra-rare diseases

Created by Dhekelia Matthew-Smith
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Enact a wealth tax on multimillionaires and use the revenue to create a ring-fenced NHS and UKRI fund that would finance research, clinical trials and treatments for ultra-rare diseases.

Many families of children with terminal conditions like Sanfilippo syndrome and BPAN have to fundraise millions themselves to finance research trials or foreign care. We believe a child’s survival shouldn’t depend on private fundraising.

The Government should create a ring-fenced fund administered by the NHS and UKRI to finance research and development, clinical trials and compassionate treatment access for ultra-rare diseases, which would be sustainably funded through a tax on UK-based individuals with net assets exceeding £10 million.

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    This petition will stay open until 16 March 2027.